Artikkelit

Hypermobiliteettisyndroomasta (tai yliliikkuvuuskirjon häiriöistä, HSD:stä) sekä Ehlers-Danlos-syndrooman hypermobiliteettimuodosta on kirjoitettu paljon artikkeleita ja tehty tutkimusta englanniksi. Mukana on pari suomalaistakin artikkelia, mutta ne ovat melko vanhoja. Lisäksi linkkien takaa löytyy muutama sivusto ruotsiksi ja norjaksi.

Otan mielelläni vastaan linkkejä hyviin artikkeleihin tai tietoon hypermobiliteettisyndroomasta tai sen hoidosta.

• American Journal of Medical Genetics Part C: Seminars in Medical Genetics, Special Issue: The Ehlers-Danlos Syndromes: Reports from the International Consortium on the Ehlers-Danlos Syndromes. Maaliskuu 2017.
• Arthralgias, fatigue, paresthesias and visceral pain: can joint hypermobility solve the puzzle? A case report. Marco Folci and Franco Capsoni. NCBI, BMC Musculoskelet Disord. v. 17; 2016. Julkaistu 4.2.2016.
• Attitudes, beliefs and behaviours towards exercise amongst individuals with joint hypermobility syndrome/Ehlers Danlos Syndrome – Hypermobility Type. Simmonds, Jane; Cairns, M. C.; Ninis, Nina; Lever, W.; Aziz, Q.; Hakim, A. University of Hertfordshire Research Archives. 2015
• Chronic widespread pain and neurophysiological symptoms in joint hypermobility syndrome (JHS). Carol Clark, Ahmed Khattab, Eloise Carr. 2014.
• Clinical Study of Hereditary Disorders of Connective Tissues in a Chilean Population Joint Hypermobility Syndrome and Vascular Ehlers-Danlos Syndrome. Jaime F. Bravo and Carlos Wolff. Arthritis & Rheumatism, American College of Rheumatology. 2006.
• Diagnosis, Management and Assessment of Adults with Joint Hypermobility Syndrome: A UK-Wide Survey of Physiotherapy Practice. Shea Palmer, Fiona Cramp, Rachel Lewis, Shahid Muhammad, Emma Clark. Musculoskeletal Care 03/2015; 13(2). 
• Dysautonomia and its underlying mechanisms in the hypermobility type of Ehlers-Danlos Syndrome. Inge De Wandele, Lies Rombaut, Luc Leybaert, Van de Borne Philippe, Tine Lm de Backer, Fransiska Malfait, Anne De Paepe, Patrick Calders. Seminars in Arthritis and Rheumatism. January 2013.
• Dysautonomia in the joint hypermobility syndrome. Yael Gazit, MD; A.Menahem Nahir, MD, PhD: Rodney Grahame, MD: Giris Jacob, MD, DSc, The American Journal of Medicine. 2003.
• EDS, en "modediagnos" som förtjänar uppmärksamhet. Eric Ronge, överläkare, Barnkliniken Skas, Skövde. Läkartidningen, Debatt. 2015.
• EDS hypermobil type / Hypermobilitetssyndrom. Sunnaas sykehus HF, Norge.
• Ehlers–Danlos Syndrome—Hypermobility Type: A Much Neglected Multisystemic Disorder. Yael Gazit, M.D., M.Sc., Giris Jacob, M.D., Ph.D., and Rodney Grahame, C.B.E., M.D., F.R.C.P., F.A.C.P. Rambam Maimonides Med Journal. Lokakuu 2016.
• Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations.  Marco Castori. 2012.
• Evaluation of Kinesiophobia and Its Correlations with Pain and Fatigue in Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome Hypermobility Type.   Claudia Celletti, Marco Castori, Giuseppe La Torre, and Filippo Camerota. BioMed Research International. 2013.
• Finger orthoses for management of joint hypermobility disorders: Relative effects on hand function and cognitive load. Anne-Mette Jensen , Joan Quist Andersen, Lena Quisth and Nerrolyn Ramstrand. The International Society of Prostehtics and Orthotics I-II. 2020. Lainattu 19.12.2020.
• Fysisk funksjon / aktivitet (i EDS/HMS). Sunnaas sykehus HF, Norge.
• Hypermobility Disorders: A Clinician’s Guide.  Dr A J Hakim MA FRCP Hypermobility Syndromes Association. 2013.
• Hypermobiliteettisyndrooma niveloireiden syynä. Minna Lehto, Raimo Suvitaival ja Kalevi Kaarela, Lääketieteellinen Aikakauskirja Duodecim. 1999.
• Intelligent Exercise – How You Can Take Control With EDS. Kathryn Lister, Associate Clinic Director with Physiotherapy Associates. The Ehlers-Danlos National Foundation live webinar. October 28, 2015. Video.
• Joint hypermobility and genetic collagen disorders: are they related?  Rodney Grahame. 1999.
• Joint hypermobility and joint hypermobility syndrome. Alan G. Pocinki, MD, PLLC. 2010.
• Joint hypermobility and rectal evacuatory dysfunction:an etiological link in abnormal connective tissue? S. D. Mohammed, P. J. Lunniss, N. Zarate, A. D. Farmer, R. Grahame, Q. Aziz & S. M. Scott. Neurogastroenterol Motil. 2010 Oct;22(10):1085-e283. doi: 10.1111/j.1365-2982.2010.01562.x. Epub 2010 Jul 5.
• Joint hypermobility: emerging disease or illness behaviour?  Rodney Grahame. 2013.
• Joint hypermobility syndrome. Juliette Ross, GP principal, Rodney Grahame, consultant rheumatologist, honorary professor, affiliate professor of pathology. BJM 2011.
• Joint Hypermobility Syndrome: Recognizing a Commonly Overlooked Cause of Chronic Pain. Bharat Kumar, MD; Petar Lenert, MD, PhD. Division of Immunology, University of Iowa, Iowa City. The American Journal of Medicine. Issue: June 2017.Volume 130, Issue 6, Pages 640–647.
• Lack of Consensus on Tests and Criteria for Generalized Joint Hypermobility, Ehlers–Danlos Syndrome: Hypermobile Type and Joint Hypermobility Syndrome. Lars Remvig, Lise Flycht,Karl B. Christensen and Birgit Juul-Kristensen. 2013.
• Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care.  Rohini H Terry, Shea T Palmer, Katharine A Rimes, Carol J Clark, Jane V Simmonds and Jeremy P Horwood. 2015
• Living with the hypermobility syndrome. S. Gurley-Green, Oxford Journals, Rheumatology.1999.
• Local anaesthetic failure in joint hypermobility syndrome. Alan J Hakim, Rodney Grahame, Paul Norris, and Colin Hopper. 2005
• Management of Pain and Fatigue in The Joint Hypermobility Syndrome (a.k.a. Ehlers–Danlos Syndrome, Hypermobility Type): Principles and Proposal for a Multidisciplinary Approach.  Marco Castori, Silvia Morlino, Claudia Celletti, Mauro Celli, Aldo Morrone, Marina Colombi, Filippo Camerota and Paola Grammatico. 2012.
• Nationwide population-based cohort study of psychiatric disorders in individuals with Ehlers–Danlos syndrome or hypermobility syndrome and their siblings. Martin Cederlöf, Henrik Larsson, Paul Lichtenstein, Catarina Almqvist, Eva Serlachius and Jonas F. Ludvigsson. BMC Psychiatry. 2016.
• Neurological manifestations of Ehlers-Danlos syndrome(s): A review. Castori M, Voermans NC.2014.
• Nivelten yliliikkuvuus.  Reumaliitto. 2023.
• Nosology and inheritance pattern(s) of joint hypermobility syndrome and Ehlers-Danlos syndrome, hypermobility type: a study of intrafamilial and interfamilial variability in 23 Italian pedigrees. Castori M, Dordoni C, Valiante M, Sperduti I, Ritelli M, Morlino S, Chiarelli N, Celletti C, Venturini M, Camerota F, Calzavara-Pinton P, Grammatico P, Colombi M. Wiley Online Library. 2014.
• Oral and dental implications.  Stephen R Porter BSc MD PhD FDS RCSEng FDS RCSEd FHEA, Institute Director and Professor of Oral Medicine, UCL Eastman Dental Institute, London. Ehlers-Danlos Support UK.
• Pain, Balance, Activity, and Participation in Children With Hypermobility Syndrome. Schubert-Hjalmarsson, Elke PT; Öhman, Anna PT, PhD; Kyllerman, Mårten PhD; Beckung, Eva PT, PhD.2012.
• Physiotherapy and occupational therapy in the hypermobile adult. Rosemary Keer, Katherine Butler. 2010.
• Regional complications in joint hypermobility syndrome - the hand. Katherine Butler. 2010.
• Relationship Between Lumbar Disc Herniation and Benign Joint Hypermobility Syndrome.İlknur Aktaş, Demet Ofluoğlu, Kenan Akgün. 2011.
• Resistance to local anesthesia in people with the Ehlers-Danlos Syndromes presenting for dental surgery. Jane R. Schubart,corresponding author Eric Schaefer Piotr Janicki, Sanjib D. Adhikary, Amber Schilling, Alan J. Hakim, Rebecca Bascom, Clair A. Francomano, and Satish R. Raj. 30.10.2019. Viitattu 9.6.2020.
• Symptom and joint mobility progression in the joint hypermobility syndrome (Ehlers-Danlos syndrome, hypermobility type). M. Castori, I. Sperduti, C. Celletti, F. Camerota, P. Grammatico. Article in Clinical and Experimental Rheumatology. January 2011.
• The effects of neuromuscular taping on gait walking strategy in a patient with joint hypermobility syndrome/Ehlers–Danlos syndrome hypermobility type.  Filippo Camerota, Manuela Galli, Veronica Cimolin, Claudia Celletti, Andrea Ancillao, David Blow, and Giorgio Albertini. 2015.
• The evidence-based rationale for physical therapy treatment of children, adolescents, and adults diagnosed with joint hypermobility syndrome/hypermobile Ehlers Danlos syndrome Raoul H.H. Engelbert, Birgit Juul-Kristensen, Verity Pacey, Inge De Wandele, Sandy Smeenk, Nicoleta Woinarosky, Stephanie Sabo, Mark C. Scheper, Leslie Russek and Jane V. Simmonds. American Journal of Medical Genetics Part C (Seminars in Medical Genetics) 175C:158–167 (2017)
• The feasibility of a randomised controlled trial of physiotherapy for adults with joint hypermobility syndrome. Palmer S, Cramp F, Clark E, Lewis R, Brookes S, Hollingworth W, Welton N, Thom H, Terry R, Rimes KA, Horwood J. University of the West of England. 2015.
• Treating Joint Hypermobility.  NHS Choices. 2011.
• Unexplained gastrointestinal symptoms and joint hypermobility: is connective tissue the missing link?  N. Zarate, A. D. Farmer, R. Grahame, S. D. Mohammed, C. H. Knowles, S. M. Scott & Q.Aziz. 2009.

Eri maissa toimivia organisaatioita sekä muita tahoja, joiden sivuilta löytää lisätietoa:

• The Ehlers-Danlos Society
• Hypermobilitetssyndromet EDS/HMS
• HMSA Hypermobility Syndromes Association
• Ehlers-Danlos Support UK
• Asociación Síndromes de Ehlers-Danlos e Hiperlaxitud

Asiantuntijoiden esitelmiä hypermobiliteettisyndroomasta videomuodossa: 

• Prevalence of hypermobility and how it manifests in general population. Professor Rodney Grahame, CSF Colloquium on October 19, 2013 in San Francisco, CA.
• Joint Hypermobility Syndrome. Prof. Shea Palmer, University of the West of England
• The Hypermobile Spine. Dr. Brad Tinkle, CSF Colloquium on October 19, 2013 in San Francisco, CA.
• Chronic Pain, Poor Sleep, Depression, Dysautonomia and Fatigue in EDS. Dr. Alan Pocinki. 2014.
• EDS Awareness - YouTube-kanava